Are any of Ava's followers still out there? We just received a bound copy of all of the blog entries and every one's comments to us over the past 5 1/2 months. We continue to be amazed at the support we have received since Ava's birth. Thank you all so much for everything you've done to help us through the lowest point in our lives. Things are still very difficult and most days the goal is just to make it through the day. We have a long way to go in healing our broken hearts.
Jamie and I have decided that we will do at least one thing each month in honor and memory of our sweet baby girl, Ava. Last month I donated a huge amount of breastmilk to Bronson Hospital in Kalamazoo. It will help premature and ill babies that can only have breastmilk. We also donated over $600 of Ava's memorial money to The Hearts of Hope Foundation.
This month Jamie, Brayden and I are doing a Walk 4 Kids fundraiser in Ann Arbor. Here is the information I took from the website:
Date: March 29Time: 9:15am registration begins/walk begins at 10a.m. Location: Downtown Ann Arbor - DTE Parking lot. We invite you to join in a magical day of fitness and fun at the Ann Arbor Walk 4 Kids on March 29, 2008. It was a natural fit for four special children’s agencies in Ann Arbor to come together to Walk 4 Kids! The Make-A-Wish Foundation® of Michigan, UM Comprehensive Cancer Center, Ronald McDonald House of Ann Arbor, UM C.S. Mott Children’s Hospital and Women’s Hospital collectively make a difference. Together we can help special children in our community. There is strength in numbers and we are joining forces to make a difference for our kids.
Many of you have asked us since Ava's death if there is anything you can do. Please consider sponsoring us for this walk as two of these foundations made such a difference in our lives. Even a small amount makes a difference. (By the way, I promise not to ask for handouts all the time!) You can send the money to us at 16030 Rivershore Ln in Buchanan or get it to Michelle Asmus by Friday, March 28th. If you would like to write a check you can make it out to The Make-A-Wish Foundation.
Thank you so much for your continued thoughts and prayers. Please continue to remember our precious Ava, as well. We take pride in knowing that she touched so many lives in the short time she was alive. We don't ever want her to be forgotten!
Sincerely,
Jamie Zimmerman
Monday, March 17, 2008
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Ava with Mommy & Daddy
Isn't she beautiful!
It's A Girl!
Hello everyone and welcome to Ava Christine's Blog.
First a little info about the new edition to our family.
This beautiful little girl comes to our family after many years of trying on her parents part as well as her being the first girl in 19 years. Yes 19 years! So to say that she is going to be a little spoiled is putting it very lightly.
Ava Christine was welcomed into this world on September 29 2007 by her mommy Jamie, Daddy Jamie, big brother Brayden, grandparents, aunts, uncles, cousins, and numerous friends. Shortly after Ava's arrival the wonderful medical staff at Memorial hospital of South Bend found what they called a murmur in Ava's heart. After some testing little Ava was transported to Motts' Children Hospital at the University of Michigan in Ann Arbor. Jamie and Jamie were informed that little Ava has a heart defect that could be life threatening and that she needed to undergo open heart surgery to fix the defects. So, on Tuesday October 2 2007 Ava was operated on by the wonderful medical staff at the U of M. What this team of doctors did to Ava is incredible. First of all Jamie explained to me over the phone today just what problems Ava's heart has endured. Ava's heart has a couple of different problems. The first is known as Interrupted Aortic Arch. The following info about interrupted aortic arch is best explained by the U of M Cardiac website, "Interrupted aortic arch is a very rare heart defect that occurs when the aorta does not develop normally while the baby is in the mother’s womb. It comprises about 1% of all congenital heart defects. It usually occurs along with other heart problems such as truncus arteriosus, ventricular septal defect, transposition of the great arteries, and aortic stenosis.The aorta is the large blood vessel that arises from the left side of the normal heart and takes red blood out to the body. The first part of the aorta, called the ascending aorta (1) arises upwards. It then curves leftward forming the aortic arch (2). The aorta then curves downward towards the lower body, and this part is called the descending aorta (3). Three blood vessels exit from the aortic arch and supply the head and arms with red blood. These vessels are called the innominate artery (4), the left carotid artery (5), and the left subclavian artery (6).In babies with interrupted aortic arch, there is a complete blockage between the ascending and the descending aorta (1). This means that there is no direct way for red blood leaving the heart to reach the body parts that are "downstream" from the blockage. The site of the defect varies (2) and may or may not involve the take-off of the head and neck vessels. In most babies with interrupted aortic arch (70-90%) there is also a large ventricular septal defect (3).In newborns with interrupted aortic arch, the only way for blood to bypass the blockage is via the patent ductus arteriosus (4). Prior to birth, this small blood vessel permits blood to by-pass the baby’s fluid-filled lungs. One or two days after birth, this vessel usually closes on its own. In a baby with interrupted aortic arch, if the duct closes, blood can no longer reach the lower body. This can cause the baby to suddenly become very ill. Therefore, after the diagnosis is made, a medicine called prostaglandin is used to keep the ductus arteriosus open until surgery". (http://www.med.umich.edu/cvc/mchc/parint.htm)
So how did the doctors fix this? "Interrupted aortic arch is a serious heart defect that requires surgery soon after birth. The goal of surgery is to create remove the blockage. This used to be done in a two-stage operation but is now done most of the time in one stage. The two ends of the aorta are sewn together (1) and the patent ductus arterious (2) is tied off. Sometimes a patch is needed to reinforce the repair. If present, a patch is sewn over the VSD (3)". (http://www.med.umich.edu/cvc/mchc/parint.htm)
In #1 of the picture below is the part of Ava' heart that was repaired.
First a little info about the new edition to our family.
This beautiful little girl comes to our family after many years of trying on her parents part as well as her being the first girl in 19 years. Yes 19 years! So to say that she is going to be a little spoiled is putting it very lightly.
Ava Christine was welcomed into this world on September 29 2007 by her mommy Jamie, Daddy Jamie, big brother Brayden, grandparents, aunts, uncles, cousins, and numerous friends. Shortly after Ava's arrival the wonderful medical staff at Memorial hospital of South Bend found what they called a murmur in Ava's heart. After some testing little Ava was transported to Motts' Children Hospital at the University of Michigan in Ann Arbor. Jamie and Jamie were informed that little Ava has a heart defect that could be life threatening and that she needed to undergo open heart surgery to fix the defects. So, on Tuesday October 2 2007 Ava was operated on by the wonderful medical staff at the U of M. What this team of doctors did to Ava is incredible. First of all Jamie explained to me over the phone today just what problems Ava's heart has endured. Ava's heart has a couple of different problems. The first is known as Interrupted Aortic Arch. The following info about interrupted aortic arch is best explained by the U of M Cardiac website, "Interrupted aortic arch is a very rare heart defect that occurs when the aorta does not develop normally while the baby is in the mother’s womb. It comprises about 1% of all congenital heart defects. It usually occurs along with other heart problems such as truncus arteriosus, ventricular septal defect, transposition of the great arteries, and aortic stenosis.The aorta is the large blood vessel that arises from the left side of the normal heart and takes red blood out to the body. The first part of the aorta, called the ascending aorta (1) arises upwards. It then curves leftward forming the aortic arch (2). The aorta then curves downward towards the lower body, and this part is called the descending aorta (3). Three blood vessels exit from the aortic arch and supply the head and arms with red blood. These vessels are called the innominate artery (4), the left carotid artery (5), and the left subclavian artery (6).In babies with interrupted aortic arch, there is a complete blockage between the ascending and the descending aorta (1). This means that there is no direct way for red blood leaving the heart to reach the body parts that are "downstream" from the blockage. The site of the defect varies (2) and may or may not involve the take-off of the head and neck vessels. In most babies with interrupted aortic arch (70-90%) there is also a large ventricular septal defect (3).In newborns with interrupted aortic arch, the only way for blood to bypass the blockage is via the patent ductus arteriosus (4). Prior to birth, this small blood vessel permits blood to by-pass the baby’s fluid-filled lungs. One or two days after birth, this vessel usually closes on its own. In a baby with interrupted aortic arch, if the duct closes, blood can no longer reach the lower body. This can cause the baby to suddenly become very ill. Therefore, after the diagnosis is made, a medicine called prostaglandin is used to keep the ductus arteriosus open until surgery". (http://www.med.umich.edu/cvc/mchc/parint.htm)
So how did the doctors fix this? "Interrupted aortic arch is a serious heart defect that requires surgery soon after birth. The goal of surgery is to create remove the blockage. This used to be done in a two-stage operation but is now done most of the time in one stage. The two ends of the aorta are sewn together (1) and the patent ductus arterious (2) is tied off. Sometimes a patch is needed to reinforce the repair. If present, a patch is sewn over the VSD (3)". (http://www.med.umich.edu/cvc/mchc/parint.htm)
In #1 of the picture below is the part of Ava' heart that was repaired.
Before surgery
The Next Step
The next step in repairing Ava's heart was to fix what is known as Truncus Arteriosus. Truncus arteriosus is "characterized by a large ventricular septal defect over which a large, single great vessel (truncus) arises. This single great vessel carries blood both to the body and to the lungs". (http://www.americanheart.org/presenter.jhtml?identifier=11073) Below is a picture of what Ava's heart was like before surgery.
Before Surgery
After Surgery
The above picture shows what the surgeon did to repair Ava's heart. "Surgery is required to close the ventricular septal defect and separate blood flow to the body from blood flow to the lungs. This is generally done early in infancy to prevent high blood pressure from damaging the lungs' arteries. A patch is used to close the ventricular defect. The pulmonary arteries are then disconnected from the single great vessel and a tube (a conduit or tunnel) is placed from the right ventricle to these pulmonary arteries. This is sometimes called a Rastelli repair". (http://www.americanheart.org/presenter.jhtml?identifier=11073)
7 comments:
never forgotten....forever loved!
erin
It is good to read a post from you. You can just take one day at a time. We think of you all often and we will never forget your sweet little girl. She has a special place in my hearts. You continue to amaze me even in the deepths of your grief you reached out and helped so many others-breast milk is a priceless gift.
Take care,
April
So good to hear from you. We hope you are finding your strength each day. Happy Easter.
Angie Plude
Jamie -
It is so nice to hear from you. I hope that as each day passes it becomes a little easier for you and your family. Ava was a preciuos gift from God who taught so many people many valuable lessons. You have an amazing family and you are truly very special yourselves for giving back to others in need. May God bless you all, you are still in our thoughts and prayers just as Ava will continue to be. Take care and we look forward to being able to see you soon!
Ginger
God bless you Zimmermans for reaching out to others! Jamie, it's great to hear from you! Your Howard/Ellis family has been thinking about you and praying that your heart is healing. Please know that Ava will never be forgotten. I know she is a constant reminder to me that I need to cherish and love the people in my life everyday because they may not always be with me on Earth.
All My Love,
Beth Altergott
P.S. I will be sure to give a donation to Michelle for your walk on March 29th. Hope the weather is good for you!
Jamie, Jamie, Brayden and all of the Weaver/Zimmerman Family,
Jamie-It is so nice to hear from you.
I hope with each day your hearts are healing more. I think of you all often and I hope that you have a nice Easter!
I will give Michelle a donation for your walk.
Randy Asmus
Jamie -
It was so nice reading your words.
Ava taught me lessons that will never be forgotten. Your family continues to amaze me, I'm proud of each one of you.
Lots of love and prayers.
Emily W.
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